Two federal laws govern the privacy of a student’s medical records when they are over 18 and/or, in the case of FERPA, when they go to college.
The Federal Educational Rights and Privacy Act (FERPA) protects the privacy of educational records which includes grades, academic standing, disciplinary events, and information relating to your student’s treatment at the campus health center.
HIPAA, the Health Information Portability and Accountability Act, protects sensitive information. Once a student turns 18, much like FERPA, HIPAA turns control of their health care and records over to them.
Because of FERPA and HIPAA, if your student seeks medical treatment on or off campus, or if they are injured or fall seriously ill and require hospitalization, you will not automatically be able to consult with medical providers, get information, or have input into their treatment.
FERPA waivers are available through the college or university, usually the registrar’s office. This may be a paper form that your student must complete or the process may be online.
FERPA waivers permit the student to select what kinds of information they want to share with their parents — it’s not a blanket waiver. So, for example, they could permit parental access to the tuition statement but not their grades or to certain categories of medical information.
The HIPAA release form is like a permission slip allowing you to be part of conversations and decisions relating to your student’s health. Something to know about HIPAA — you must specify the health care provider (clinic, doctor, hospital) that’s being authorized to release/share information about your student’s treatment — this may mean completing one for both the campus health center and also the nearest hospital where they would most likely go in case of an emergency. If your student will seek treatment from an off-campus provider, you will need a form for that as well.
The school’s health services webpage may include links to free forms that your family can use. Your doctor’s office at home may also provide one.
To be on the safe side, fill out HIPAA release forms for your home state and the school state.
Stand-alone HIPAA release forms don’t need to be notarized.
A Medical Power of Attorney, or Healthcare Proxy, designates someone (for example you, the parent) to act as an agent in case the named individual (your student) isn’t able to make decisions on their own.
Each state’s form is different, and in some states the form will need to be notarized. A bonus of completing this kind of form: in many states, HIPAA release is rolled into Medical Power of Attorney so you will only need one form.
Create a Medical Power of Attorney form customized by state here: https://eforms.com/power-of-attorney/medical/. This website also links to Durable Power of Attorney forms (for financial decision-making) and Living Wills.
One reason to consider an Advance Directive, used to spell out preferences for end-of-life care, is that it often includes Medical Power of Attorney.
The National Hospice and Palliative Care Organization has information about preparing Advance Directives along with links to download your state’s form.
With all forms: Sign, notarize (if required), and save both hard and electronic copies on your phones and home computers.
FERPA, HIPAA and Important Family Decisions (CollegiateParent)
Will You Be Able to Help Your College-Age Child in a Medical Emergency? (Consumer Reports)